James Berry

Company: Cardiovasuclar Genetics

Job title: Associate Neurologist

Seminars:

Improving Disease Scoring Systems in ALS: Addressing Heterogeneity & Decline Rates to More Accurately Interrogate Drug Efficacy in Patient Subgroups 9:30 am

Understanding ALS heterogeneity to explore the key factors contributing to ALS diverse progression rates and how heterogeneity can be accounted for in clinical scoring systems Overviewing current ALS-FRS scoring systems and their limitations in both clinical trials and routine care, and why current scores may not adequately reflect all patients’ experience (e.g. patients with different…Read more

day: Conference Day Two

ALL ALS: Establishing a National Research Consortium to Accelerate ALS Drug Discovery and Harmonize Global Data 5:00 pm

ALL ALS is an NIH-funded initiative to enroll nearly all ALS patients in the U.S., collecting clinical data, biosamples, and digital health measures through site-based and remote methods Integrating datasets from Target ALS, Answer ALS, and AMP-ALS into a public portal to accelerate research and therapeutic development Harmonizing ALS research data with other neurological diseases,…Read more

day: Conference Day One PM

Panel Discussion: Uniting Forces: Collaborative Initiatives Driving ALS Drug Development Through Data Sharing & Accelerated Research 5:30 pm

How are these initiatives complementing each other in the ALS research space? What are the biggest hurdles in harmonizing and sharing data across these programs? How do we ensure that patient-centric approaches remain at the forefront of these efforts? What are the best practices for ensuring standardization and quality of collected data? How can international…Read more

day: Conference Day One PM