Mary Kay Turner

Company: BrainStorm Cell Therapeutics

Job title: Senior Vice President - Global Patient Advocacy & Public Affairs

Seminars:

Building Transparent and Inclusive ALS Trials: Best Practices in Early Access Programs (EAPs) & Open Label Extensions (OLEs) 3:30 pm

Investigate how clear communication and data sharing between researchers, patients and caregivers can improve trust and engagement in EAPs and OLEs for more transparent trial design Highlighting the importance of early and meaningful patient involvement in shaping trial goals, eligibility criteria and logistics to ensure trials reflect patient priorities Exploring innovative approaches to minimize placebo…Read more

day: Conference Day Two PM

Panel Discussion: Patient, Caregiver & Practitioner Perspectives: Lived Experience, ALS Multi-Disciplinary Clinic Access & Choosing to Participate in a Clinical Trial 4:00 pm

Understanding the broader patient experience from both patient and caregiverperspective Exploring the path to receiving an ALS Diagnosis and finding a multidisciplinary clinic and how we decrease time to diagnosis Unpacking the decision to participate in a clinical trial Balancing patient centricity and science in developing clinical trial protocols Discussing how to gather actionable insights…Read more

day: Conference Day Two PM