Kate Nycz
Seminars
Wednesday 3rd June 2026
Fireside Chat: Redefining the ALS Experience: Insights From Younger Patients Driving Change in Drug Development
4:50 pm
- How ALS impacts younger adults in their 20s–40s and how their priorities and lived experiences differ from the broader ALS population
- Why direct engagement with younger ALS patients is vital for more inclusive trial design, endpoint selection, and R&D decisions
- How younger patients use technology, adaptive tools, and creative problem‑solving to maintain independence and drive practical innovation
- How R&D teams can build stronger partnerships with younger ALS communities to improve trial access, flexibility, and real‑world relevance
